Welcome to DebRA.org!
The Dystrophic Epidermolysis Bullosa Research Association of America, Inc. (DEBRA) is the only national not-for-profit organization working to cure Epidermolysis Bullosa; to promote EB research, education and advocacy; and to provide services and support for people with this blistering disorder and their families.
www.debra.org/   reviews

Nicky's EB Info World ~ Epidermolysis Bullosa
The mother of a child with a dreadful and devastating genetic skin disorder called epidermolysis bullosa eb recessive dystrophic hallopeau siemens offers not only advice and help in taking care of these babies and children but also has pages that show pictures of the children, memorials along with extensive information about the disorder ...
www.geocities.com/Heartland/Meadows/6473/ebinfo.htm   reviews